In our last Brainwaves, I introduced a new epilepsy concept called ‘a life interrupted’. I’ve been pleased to see that people are engaging with this idea and I’ve had many thoughtful conversations around it over the last few weeks.
Along the same line, I’ve realised the title of ‘carer’ is not always one that sits well with people who are supporting someone with epilepsy. I am considering changing our terminology from carer to caregiver – what do you think? I would value your thoughts on both these changes to our language.
Thank you to everyone who participated in and supported our 2021 Walk For Epilepsy event last month – it was our biggest turnout so far and we raised valuable awareness and funds to support Tasmanians with epilepsy.
Thank you also to Fit n Kicking for their continued fundraising support with the Mount Barrow Challenge. Although it was a freezing and snowy day, it didn’t deter people from attending and we would particularly like to congratulate all participants for their dedication and to Megs at Fit n Kicking for organising and managing this event.
If you’ve visited our website recently you may have noticed the menu has changed. Following feedback, we have renamed and reorganised some of it to better reflect the immediate needs of people with epilepsy. Have a look and let us know what you think: https://epilepsytasmania.org.au/
Wendy Groot, CEO Epilepsy Tasmania.
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