Newsletters

Hi Friend, Next week is already March which is Epilepsy Awareness Month. There is a national campaign about to be launched and a number of Tasmanian initiatives, including our new fundraising platform here.  We are still ironing out a few creases on this new site, so please call if you’re having any trouble. Read more below about […]

Hi Friend, Welcome to the first Brainwaves for 2022. Although the year has not begun as most of us might have hoped we are optimistic that together we will continue to provide quality support services and activities for the Tasmanian epilepsy community. Below there are links to some of our latest videos produced by our engagement […]

Hi Friend, Our last Brainwaves edition prompted some welcome constructive feedback following my thoughts of changing the word Epilepsy Tasmania uses to describe a ‘carer’. Thank you to the interstate Neuropsychologist who took the time to say they agree that the carer title implies helplessness and may negate the intermittent aspect of the relationship when the person with epilepsy requires no assistance. This caring relationship can also range […]

Hi Friend, In our last Brainwaves, I introduced a new epilepsy concept called ‘a life interrupted’. I’ve been pleased to see that people are engaging with this idea and I’ve had many thoughtful conversations around it over the last few weeks. Along the same line, I’ve realised the title of ‘carer’ is not always one that sits well with people who are supporting someone with epilepsy. […]

Hi Friend, A life interrupted … In the last little while I have been doing some thinking about the ‘tags’ we wear. During October, many of these tags highlight specific issues people face: Seniors’ Week, Carers’ Week, Mental Health Week, Children’s Week, Anti-Poverty Week, SUPEP Action Day (see below for more info on this) and so on. People with epilepsy often […]

Hi Friend, We are very pleased to thank the State Government for their continued funding support of Epilepsy Tasmania in the recent budget announcements. I’m also happy to reveal that The Puzzle People’s jigsaw competition is now fully booked. Teams will compete to represent Tasmania at the national puzzle championships while supporting Tasmanians with epilepsy. Mark the 25th of September in your diary […]

Hi Friend, There is a lot happening here at Epilepsy Tasmania. We are pleased to advise of exciting progress with Primary Health Tasmania to improve the pathways that will help GPs easily refer individuals and families to our services. I would personally like to invite you to have a say in our future directions – Epilepsy Tasmania is looking for 2 new volunteer Board […]

Hi Friend, This week, I mark five years as CEO of Epilepsy Tasmania and I’ve been reflecting on our celebrations and challenges and looking forward to my next five. Through advocacy and awareness-raising efforts, we are proud to now be known as ‘Tasmania’s voice for epilepsy’.   Our team has grown over the years to include allied health professionals, communications, community engagement, volunteer […]

Hello Friend, Epilepsy Awareness Month this March was an array of events, fundraisers and activities. We had buildings lit up all over the State and Penguin’s penguin was dressed in a beautiful handmade outfit. Some photos of the month are collated below and there are more on our Facebook page. Thank you to all Tasmanians who participated. Our seizure […]

Hello Friend, It’s Epilepsy Awareness Month! We began March with an Open Garden at Government House. It was a wonderful day and following Covid-19 requirements during the morning, over 90 people participated in walks around the garden. A heartfelt thank you to Her Excellency Professor the Honourable Kate Warner AC for granting access to the beautiful gardens. Our new #JustGoPurple initiative […]